One of the hardest things to deal with since my son’s diagnosis has been the unknown. There are so many “what ifs” it’s overwhelming. I still lie awake at night worrying about things over which I have no control. It started with, “How will I know if he is bleeding?”. Then “What if I don’t … Continue reading Fear of the Unknown
I ended Part 1 of Tyler’s compartment syndrome story with the fasciotomy just having been done. He was sent to the ICU while waiting for the swelling to go down somewhat so the surgeons could get the wound covered and start the healing process. Tyler’s next surgery consisted of placing shark collagen over the top part of the wound. The bottom portion was … Continue reading Compartment Syndrome: The Evil Within – Part 2
Blogging about Bleeding Disorders 